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Saturday, May 28, 2016

5/28/16 - Frustration

This has been a very frustrating day. I could go into details but it ticks me off to think about it.

Tuesday, February 16, 2016

2/16/16 - Meantime

"In the meantime" keeps popping in my head, a lot! To me it means I'm doing this, waiting for that. I have no idea what this and that are. My mind stays jumbled most of the time. It is so hard for me to concentrate and finish a task. I do set alarms for myself when I'm in the meantime. When I read I try to pause and absorb but all this stuff in my brain takes over. When I pray all this stuff in my brain takes over. I pray that all this stuff in my brain that takes over would settle down and stop. In the night when I'm awake I think I should put this jumble on paper but I don't. I think I should do a lot of things, but I don't. As I'm laying here now typing this I think I should be doing something else, but I don't. 

There is this MS place on the net that says I can but I've found that so many things I've tried I can't. There is another MS thing that I've read that says think positive, speak positive...they must not have MS. It's pure crap. MS really sucks, all the time! I'm so mad about it. Sometimes I'm mad at God but most of the time I'm just mad. I've lived a certain way for over 50 years and now this thing called MS has changed everything. I have to change the way I do just about everything and I HATE IT!
 
Better days are coming my ass.

Monday, January 11, 2016

1/11/16 - Happy New Year

We are in the second week of 2016 already! I like a new year, I have a brand new planner, a new calendar and lots of hope I can get myself organized. 

I started bullet journaling and I think it has potential to keep me from forgetting daily things. We'll see. So far I have been taking my vitamins regularly.
 
Last month I found this cool blog, Sweet Blessings. She has created a monthly list of scriptures to write daily. I am really enjoying this. You spend time in the Word and I seem to be able to remember it better than if I just read it. Her website: http://www.swtblessings.com
 
I have been invited to join the Bible Gateway Blogger Grid (BG²). More to come about that.

I have the great pleasure of babysitting the cutest boy in the world on Tuesdays and Thursdays. He is such a sweetheart. I love me some grandbabies. Proverbs 17:6 Grandchildren are the crown of the aged.
 
I actually cooked dinner tonight. I had a chicken and some potatoes. I had intended to have asparagus but I waited too late to cook them. Stuff happens. I cooked them taters in with that bird and boy was it good. I had stuck an onion up the bird's hiney too...yummy! I'm going to make chicken noodle soup with the leftovers 
 
Well, enough for today. Maybe I can do more here than I have been. I said "maybe"!!
 
Better days are coming, you just wait and see.

Wednesday, November 18, 2015

11/18/15 - The old me

The old me:
 
Loved taking a shower.
Kept my house clean.
Wore makeup.
Cooked dinner on a regular basis.
Cared about my looks.
Could babysit my grandbabies for a whole day.
Could run up and down steps.
Could stand from a squat.
Didn't get dizzy.
Didn't have vertigo.
Didn't have numb areas on my body.
Took pleasure in life.
Was pleasing (most of the time).
Smiled.
Laughed.
Didn't have unbearable pain daily.
Had clear vision.
Didn't have tremors.
Didn't have to put on an act for everyone so they won't worry.
Took pleasure in reading. 
Loved my artwork.
Loved going to the beach.
Didn't mind shopping.
Sent out Christmas cards.
Had fairly good hand writing.
Could sing.
Was thoughtful.
Didn't have to concentrate to pee.
Loved working in the yard.
Could form a complete sentence without going through charades for a forgotten word.
Was smart.
Was kind.
 
The new me, not so much.




Wednesday, October 28, 2015

10/28/15 - Copaxone

I received the Copaxone yesterday and will be scheduling the nurse for training on the injections. I pray this MS drug helps me in every way it can. I spoke with my MS peer and she's been on it for 15 years and her MS is no worse than when she was diagnosed. Sounds good to me. Obviously it doesn't heal the MS but I pray it gets no worse.
 
So my seemingly monthly bronchitis is getting better. Lungs are still crackling but not as bad. MS is an autoimmune disease, your body is attacking itself, so I'm guessing that lowers my immune system and enables me to catch anything. I need to get blood work done, if I get a night that I'm not taking anything after midnight. I need to go to my PCP and find out this stuff plus get a flu shot. By then I might be able to give it to myself.

Laundry day today. With my lung capacity I might camp out in the basement.

Oh my gosh, I made the best bacon and baked potato soup yesterday...it was my first time. It was awesome! The down side of that is I realize that bacon gives me indigestion. WTH!?!?!? I LOVE BACON!!!! It was ok when sausage gave me indigestion, I didn't love it! So I'm in bacon mourning. I don't want to talk about it.
 
I've lost 10 pounds. Don't know where either. I looked behind me and it's not there. I'm not gonna look too hard because I don't want it back.
 
My laundry calls...better days are coming.
#MSSUCKS