Saturday, March 29, 2014

3/29/14 - Somewhere out there

My daffodils have bloomed!!  That means I've missed my crocus.  I loved them, they would just came up all helter skelter in my back yard.  Which reminds me (helter skelter reminds me of California which reminds me of earthquakes which reminds me of) I had another earthquake leg spasms today and then me knee got stuck until the end of the quake.  This one really hurt.  Yes, I'm calling the Dr. on Monday.

I don't think Saturdays are supposed to be rainy are they?  I think it should rain at night, that way we would have nice sunny day time and we'd get our vitamin D.  I'm pretty much rambling today, I'm missing my baby Gem.  I haven't seen her in a while.

My bestie brought me over a blessing, a salve and some of the most precious things I've seen in a long time.  Miss T's 1st grade class at Lighthouse Christian School prayed for me and then made me cards.  Each of the cards said "Dawn, God loves you" and they were signed by the designer with love and included a scripture.  Now they are a blessing for me and a salve for my heart.  I believe God looks down tenderly on the brokenhearted.  

Look how that bee has gone all over and the other bee has his head all the way in that tulip with his hiney up.
  
This one is amazing for 1st grade, baby birds waiting for worms that mommy bird is bringing and more and more.





A beautiful rainbow and lovely butterflies and flowers.  
These wonderful children have blessed me.  The cards are a warm blessing, the scripture surely is a blessing, the loving regards are a blessing and it was a blessing that they were prayed over.  This is only a few of the cards I can look over and over again.  I am also blessed to have a bestie that works at LCS, thank you Donna.

Better days are coming.

Friday, March 28, 2014

3/28/14 - Blew it out, cause that's what lunatics do

It has been a cleaning laptop day today.  It's shining and sparkly and just winked at me...serious!!  Not really.  When having MS or fibro excess fatigue goes along with it so when you do "something" you really feel like you accomplished something grand.  I feel like Yay, I did something today!

Dawn did something!!
Usually the next day I'm very sore but I don't think I will be with just the laptop.  There are so many things to do!  I usually have several tasks on my lists and I sit here and look at them heehee.

I was going to add a gadget for a poll but it was dumb so maybe you'll comment here. You don't have to have a gmail account, you may comment anonymously.  The comments will be moderated by me so yours may not be shown if you hate me, think I'm a lunatic or immature.

Would you like a day of the week for recipes?
Would you like a day of the week for group support?

I'm only gonna ask a couple today, okie dokie?

Hey, always remember, better days are coming.


Thursday, March 27, 2014

3/27/14 - I've got a pea up my nostril - that's what lunatics do

Hey, is there any place in the world that you've seen so many pictures of that you'd really not care to visit.  Say Paris or Lombard St. in San Fran.  Can you imagine living on that street?  Do they close it at night or do they let the drunk drivers on motorcycles ride down it...cool!  But really, how many times have you seen this street?  To go down it..eh.



I love to travel and hopefully once the doctor gets my health under control we hope to be taking small trips.  I'm not sure we'll be doing it the way I wanted but traveling nonetheless.  What does it matter what you sleep in at night, what matters is what you see during the day.

The snow made us miss our Bible study.  (Missed seeing my girlfriend and Randy)  Not us actually but the church canceled because the parking lot was still icy.  Speaking of icy, when I got to vampire alley to get my blood work done nothing had been done to improve their parking lot OR their sidewalk.  I feel sorry for the people that work in those businesses because they have to listen to the harassment from the patrons.  I was really afraid to walk across it because I'll fall in my house just walking across the floor.  I made it though!!
  
Fell asleep today in the recliner with my cell phone on chest.  When I woke up I find I've missed 2 calls.  How?  The phone was right there!!  Nice nap, that's for sure.

I hope you've had a beautiful day, God bless you, God loves you and always remember better days are coming.

ps:  I have been having heart problems all day.  I should be speaking with my neuro tomorrow.  I really put off going to the ER because of the quality of ER's in Sussex County.  It seems to have eased off.  When I stand my blood pressure goes up then I breathe like I'm taking my last breath.  Please keep me in your prayers.  I fun around and joke but I've been scared today.  Thanks.


Tuesday, March 25, 2014

3/25/14 - Snow...again

Oh my gosh!!  It's snowing again.  But we can expect snow at least up until the middle of May.  I've seen snow the middle of April enough to fill up tulip cups.  At the time the sweet peas (flower) had bloomed.  Even though the calendar says spring, it still may snow.  Wow, I'm being a grumpy gills, sorry.

I went to my pain management today and I was doing great with what he has me on and I am thoroughly pleased at finally being out of pain.  Thank God!!  The Doctor said before he got me out of pain to give him a goal of 4 things.  I said 1. Babysit Cali. 2. Walk on the beach. 3. Read a book 4. Climb the Indian River Bridge.  I've been reading, went to Towers but didn't walk on the beach yet, the weather has kept me from the bridge (and a few other things) and I can't wait for my Cali when I'm a little stronger and not falling.  

I have blood work tomorrow so this will be one piece of the pie for the neurologist to help me with this MS.

I'm going to Bible Study tomorrow night at Dagsboro Church of God.  It's been a long time since I've been to church.  I'll leave it at that for now.

For those of you around here...I hope you got your bread, milk and tp.

Better days are coming. (maybe without snow)

Sunday, March 23, 2014

3/23/14 - Girlfriend day

It's 1215am, I've already been asleep for the night.  That's the reason I didn't answer your texts.  I was out, like a light, zzzzzzzzzz, hibernating, you get the idea.

I had a girlfriend day with my girlfriend Donna.  We got our hairs did and yes, that is our natural color, and we got our hairs cut.  Donna's sister Terry did our hair so it was a chat and giggle fest all around. The owner of the salon kept turning around and looking at us...Yikes.

Once our hair was done, Donna and I went to lunch at Ruby Tuesday's in Rehoboth.  Of course there was more laughing and reminiscing.  I needed a day of laughing and cute hair cut.  We are supposed to go to Bible Study Wednesday night, someone will have to separate us for sure.

When I got home I was exhausted!  But I loved the exhaustion.  So I went and laid down on the bed for a nap, hahahahahahahahah.  I didn't take my night-time medicine.  I might go ahead and take them and see what happens.

For those of you that texted me and didn't get a reply, I'm sorry.   Remember

Better days are coming.



 

Wednesday, March 19, 2014

3/19/14 - Christiana Care

So yesterday I went to the specialist at Christiana, Dr. Silversteen.  I really liked him.  He does see lesions on the previous MRI'S, he agrees my symptoms all look like MS but he wants new MRI's of my orbits to confirm the optic neuritis and he wants more blood work.  He said the lesions could be from all the years of smoking.  He can explain all my symptoms off to something else and yet they can all point back to MS.  It would be such a blessing to see "The life and times of Dawn".  God holds this decision, not me.

So we still don't know the gender of my grandbaby.  No one is more anxious though than Kristin.  She's trying to get an appointment soon.

To tired to type.........

Better days are coming.




Monday, March 17, 2014

3/17/14 - No gender reveal yet

Darn snow.  She didn't make it to Dover because as usual the State closes when we get a little snow.  They will try to squeeze her in tomorrow.  They should be able to, she's not that big.  Hee hee!!

I missed going to see my Cali.  She's going to be a great big sister.  She's very kind and very sweet.

My neighbors across the street is Lingo Marine.  Donald Lingo plowed out my driveway with his pickup and also plowed out where the mailman would go.  Now that's a good neighbor.

Sunday, March 16, 2014

3/16/14 - Laundry Day!! Woohoo!!

I'm not crazy, I love to do laundry.  I love the sound of the washer chugging away.  I love the feeling of the humidity of the dryer.  No seriously...I do!!  I can do chores here and there, not much but I can do all the laundry.  I can sit down and fold the clothes and then I can stand long enough to put the clothes in the washer, or dryer, or closet, or chest-of-drawers.  The only bad thing this morning, I don't have any more detergent.  I know I'll get some very soon.

I haven't been driving since around Christmas.  I saw a description which really fit my left eye.  It's like looking through a water falls.  No doctor has told me to stop but it just scares me to drive.  I'm sure in an emergency, local, I could do it.  It's ok if I'm familiar with the roads.  If I'm not I can not read the signs.  I go to the ophthalmologist next week, we'll see.

Tomorrow is the day of the reveal.  It's when I find out if I'm going to have another granddaughter to spoil or if I've got a grandson to be rough with...I mean later on...duh.  I'm very excited.  So it better not snow, no snow!!!  I've been praying, no snow.  My praying friends...no snow!!  She's got to be able to get to Dover to be able to see what's between those little legs...garsh!  I'm posting this early so you can be praying all day.  It's not hard.  Dear Heavenly Father, we humbly ask that there be no snow in Delaware tonight or tomorrow.  We thank you in Jesus' name. Amen.  Not hard right?  Now KEEP DOING IT!!

Better days are coming.


Friday, March 14, 2014

3/14/14 - REBIF!!

REBIF!! Oh my goodness, finally.  My "doctor" has finally, after 2 weeks, gotten me Rebif, actually I have gotten it with all the pestering to the "doctor's" office I have done over the last week or so.  Rebif is an injectable MS drug.  It is scheduled for delivery next week, 2 days after my visit to my new neurologist.  He may decide that he doesn't want me to have Rebif and that's fine with me because I'm counting this as a small victory.

I used to be very timid on the phone but the 25 years with the State Police has helped me with that.  I hate when you call somewhere with a request, spell it out very clearly and then get a reply of "I don't know what you're asking me to do."  If you are already frustrated it doesn't help.  I have never seen such lousy "doctor's" service as the one that I just had.  They wouldn't return phone calls or emails.  The "doctor" didn't know that MS is painful, and still would ask "Why are you in such pain?".  Seriously?  A simple web search will tell you that MS causes pain.  This "doctor" is a neurologist that says he treats MS.

There is only one MS specialist in DE, he's in Newark, that's where I'm headed Tuesday.  Betcha he knows that MS hurts.  Isn't it sad though that we have to travel 100 miles to reach a specialist in anything.  Before I found this neurologist I was ready to pack it all up and go to Johns Hopkins.  I got my information from the MS Society of Delaware.  They and MS Lifelines have been such a help to me.  Rebif will be sending a nurse to me to teach me how to give myself these needles.  I have to take them every other day.  Side-effects aren't great but...

My dream after I retired was to sell the house and get an RV and go full-time RVing.  With MS this may have to change a bit.  I have been looking at NPS lodges.  They are expensive but oh my, can you imagine waking up with a Grand Canyon view?  It's something I'm thinking about.

Ok, I've copied this from the webpage:

Annoyed when you are typing a document and accidentally the palm of your hand brushes the touchpad, changing the position of the cursor in your document or accidentally clicking on an option. TouchFreeze is simple utility for Windows to solve this problem. It automatically disables touchpad while you are typing text.

http://code.google.com/p/touchfreeze/

It really works!  Thank God I found this before I pulled every hair out of my head.

Remember always God is Good! And...Better days are coming.





Thursday, March 13, 2014

3/13/14 - It's colder than a..

Remember it was 67 yesterday, it's 27 this morning with the wind chill of 14.  I'm cold, thank God I'm not homeless, my heart goes out to them.  I guess I could be.  Really, who of us could take in a couple extra people in their house, now, who would take a couple extra people?   Tough one huh?


I believe this guy would have done it, I believe he would have offered a place to a homeless family.  That's my Daddy that passed away in 1992, that's me and I'd say I was around 16 or 17ish and I believe we were at Cypress Gardens, FL.

My cousin Cara and her parents were on this trip with their camper.  Even though we were in Florida, we were there in February for my parents anniversary on the 2nd.

We made it to Kissimmee at a KOA.  This was before this area was built up, only a couple years after Disney World had been built.  This KOA had live orange trees and my Dad would shake the crap out of them and we would pick up the ripe fruit.  You'll never find any like that at any super market.

They had an open swimming pool.  The air temperature was barely in the 70's, ok 65ish and the pool water temperature was about the same.  So Cara and I got on our bathing suits and we got our Mom's to get their camera's ready to take the pictures.  We took off our sweatshirts and jumped in the water and they took some pictures.  Awesome!  I'm sure Mom has some of those pictures in one of her scrapbooks.  We got out of there fast before frostbite attacked our legs and feet.  But since we were in Florida I wanted my friends to know I went swimming while they were freezing in Delaware.

It was great camping in my youth.

My neighbor Cathy just text me with closet door trouble.  It seems when we are together it's comic relief.  She said the door was stuck.  So I brought over my little wonder bar tool and a screw driver kit.  She had taken off the doorknob, I asked her where the other side went, she said it dropped down on the floor.  So we had to tear apart the innards and then the door came open.  It's scary when we're together but we got the job done.

Remember, better days are coming.

Wednesday, March 12, 2014

3/12/14 - Sleepy time for me

I have slept from around 5pm yesterday to around 7pm tonight.  Good grief...I don't know why.  This has happened a couple times in the last few years.  I'll be awake for a little while, enough to eat, use the restroom, etc.  But the great thing about this is my cognitive issues are lessened.

My granddaughter Cali will be playing t-ball this spring.  Her Daddy and Grandpa will be coaching her team.  T-ball is the best years of little league.  No matter what position they are playing the field, when the ball is hit, they all converge on it.  So cute.  I can't wait to go see her.

My youngest daughter Kristin, Cali's Mommy is pregnant and due in August.  Cali will be having a little brother or sister.  They are having something new to me a "Gender Reveal" party where they reveal whether she is having a boy or girl.  What a great idea.

Pet peeve du jour...watching kissing on tv.  Yuck.

The temperatures today were in the 60's.  They are supposed to drop in the 20's tonight.  But before the dropping of the temps we are supposed to have thunderstorms.  I guess I better get snuggled in bed.

Better days are coming.




Tuesday, March 11, 2014

3/11/14 - What is it, summer?

I kept seeing motorcycles going by this morning and I thought, what, is it motorcycle day?  Then I went outside.  Oh my gosh, it was so nice out.

My oldest daughter Meghan is studying to become a Registered Nurse.  She made the Dean's List last semester.  I am very proud of her.  Congratulations!

I always knew that Meghan was going to be smart in school.  Her kindergarten teacher sent home a note after the first day of autumn/fall.  The teacher announced that "Today is the first day of Autumn." Meghan announced to the teacher "No it isn't, today is the first day of Fall."  And now on to the Dean's List.

Last night I woke up around 1 or 2 am and I was still listening to "The Help" but guess what?  I had found a spot on it I hadn't heard before.  Strange.

Good grief, I can't stop taking naps this afternoon.  Do you know what that means?  I'll be up during the night.  Do you know what that means?  "The Help" in my ears.  I might listen to this binural beats app that I have.  It has a didgeridoo track on it, kinda like that sound.  I'll be talking with an Australian accent in the morning.  For those of you who don't know what a didgeridoo is.

 
 Hey, always remember, better days are coming.

Monday, March 10, 2014

3/10/14 - Oh What A Beautiful Morning...

Oh What A Beautiful Day.  Sound good don't I?  Much better when you are there and I am here.  Hee hee.  Since I fell, over a week ago, and wrenched my left knee it has felt better to sleep in the recliner.  I think it's because it limits me turning over and over.  So anyway...last night I tried the bed again.  Started on my back with knee slightly up, ouch.  Then to left side, not bad but my dang right leg wanted to sleep on top of my left leg and just would NOT listen when I told it to get off so back to the recliner.  By then all the medicine that was to make me drowsy and not hurt was worn off and it was 7:30.  What was I to do?  Well in 3 hours I can take another med.  I could always go down one of google's rabbit holes...come on!  I'm not preaching to the choir here, seriously, google wallet??!!  Ok, I better stop.  So I head to my favorite "The Help" on Audible and I'll start it at the beginning. I think I was awake until around 3ish.  Hmmmm...is "ish" outish?  I should think about these things at 1 - 3 am.  But no, I'm listening to "The Help" for the umpteenth time.
My Dad used to work at H.E. Williams & Co. in Millsboro and I can see the elevator from my recliner.  It has a couple lights on the top.  It used to have a star on top for Christmas.  Anyway, last night, the two lights pointed at me and blinked twice.  No I'm not crazy (I first wrote that without the word "not").  Freaky, huh?  I'll let you know if it happens again tonight.  My Dad has always blinked lights at me and the girls but this is way big!!

Poor, poor Adam Levine, he still suffers *sob* from *sniff* from *voice cracks* acne.  Give me a break.  There are girls fighting around you bub so shuddup!! I say those "fight like a girl" cancer club girls should come beat the crap out of his sissy ass.  Oops, the devil finger came back. 


Better watch what Daffy say...Shaddup!!
I better hit the recliner and listen to more of The Help, it's 8:24 pm.

Sunday, March 9, 2014

3/9/14 - I was laughing at myself this morning

I am in a few MS groups on Facebook.  This morning early I was reading a question and answers from a man about cognitive issues.  (I had slept in the recliner last night because it hurts my leg less. I am going to a new Neurologist next week and I wanted to write down all of my symptoms.)  I got up immediately, turned on the light and wrote down cognitive issues because I didn't want to forget them.  I'm still chuckling over it.  Okay, you all may not find it as funny as I but at least I woke up laughing.
My girlfriend Donna works at Lighthouse Christian School.  Some wonderful children from the 3rd grade has sent me a "Healing Book".  It has been anointed with oil and prayed over.  Donna and I had had lunch on one of my very down days.  It shows scripture that I can use when I'm doing my devotionals.



This is only one of this 3rd grade classes Ministries.  I am blessed for receiving one of these books.  I also have the honor of knowing one of these 3rd graders, Hi Patrick.  I pray you all stay in God's will.  Thank you so much.

Better days are coming.

Saturday, March 8, 2014

3/8/14 - I'm Sorry

 I’m Sorry.  I’m Sorry.  I’m Sorry.

  
It's something that we don't say as often as we should.  I'm sorry for having MS.  I'm sorry for acting in the way that I do with MS.  I'm sorry that I need a cane because I'm unstable on my feet.  I'm sorry I have Primary Progressive MS.  I'm sorry that it is the worse type of MS.  I'm sorry I have bad days.  It's in orange to honor MS awareness.  Donate for a cure.

I'm sorry that many people live everyday with MS because they haven't given up.  I'm sorry I've given up.

I am sorry we didn't stop yesterday to see if the lady that was stopped on the side of the road was ok.  The one really bad thing about this is I have no control because I can't drive.  I go when someone is ready and I go where they want to go.  I pray this new med will make me feel a lot better.  Maybe I can go back to driving.

I'm really sorry that these damn hands have tremors while I type this, I really hate that. I'm sorry I can't stay awake any longer.  I'm sorry but I need to take a nap, another MS thing.



Friday, March 7, 2014

3/7/14 - Princess had her party

Oh she partied, she wanted to dance.  I got her a

I got to this ^ 3 times so I'm gonna leave it that way.  Let's just say that Cali had a great time and Mommy and Daddy were very happy.

Better days are coming.


Wednesday, March 5, 2014

3/5/14 - One day til 4

My baby Gem will be 4 years old tomorrow.  It is hard for me to wrap my head around that.  I was right there with my baby girl when Kristin's joy was born.  She has been a bundle of joy, chaos, love, tears, giggles, dirty diapers and that was just me!!  She has been a Joy to me and is becoming more of a Joy to me.  She helps me come in her house and helps get around.  I love her more each day.  We've had so many good times.

For the past couple of days I have been going through a very rough MS episode.  It feels like I'm losing touch with reality.  Don't know what to do about that.  I can barely function throughout the day.  I can take care of myself, David cooks but he's been doing that for a while anyway.  I know I have many things to make decisions about but I am unable to sit down and do it.

Tuesday, March 4, 2014

3/4/14 - Snow cream

Have you ever had it?  It is so good. After the 2nd or 3rd snow you have to take the top layer off and get a good batch off.  I don't know if David is going to eat any.  I took the easy way and use the condensed sweetened milk, that way I didn't have to add anything.  So after dinner we will have it as dessert, it he doesn't want it I will eat it for dessert and late dessert, and later dessert.

   I would ask you to join me but there would be too many of you at the door with spoons.

I guess the state will be open tomorrow, unless there is more snow on the way.  I don't think I have any plans until Thursday for a little girls birthday.

I have been having problems with MS and typing some of it is I've been typing in phonics. So here goes me not fixing up my spelling my typing from phonics.  It might be bad but it might be ok.  David is out plowing snow ana here i amd not plowing snow but I'd love to be, I'd love to be doing soming.

Back to correcting me.  I love you all very much.  I know you all can't make comments.  I know all that can and will pray for me are, thank you. 
  

Sunday, March 2, 2014

3/1/14 - Bestie LaDonna

I've told you I was not a good friend well by the help of a text we got together for lunch yesterday.  Donna is one of my "besties" there were 5 of us but now we are going to add David.  I told you how crazy I was now with the MS and how it messes up my brain, it doesn't help my memory...Anyway...
We hugged, our eyes leaked, we laughed, I met Donna's son-in-law to be, we caught up one year in 2 hours in Georgia House until my legs started acting up.  I'm glad David trusted you with me.

It was the best time.
It was like old times.
It was like new times.
We agreed grandkids a special.
I'm glad we still get each other or they'd take us to the crazy farm.
No matter how long it's been, you gotta friend in me.